Poonam’s story

Possessing a cheeky smile and giggle, 16-year-old Poonam appears every bit the typical teenage girl. She likes hanging out with her friends at school in her rural village in the state of Madhya Pradesh, enjoys painting and plans to become a nurse.

This future is now within her reach thanks to reconstructive surgery she received on her hand at the Vadala Mission hospital.

Poonam caught leprosy three years ago, which started off as patches on the side of her neck but soon spread to her hand.

“I was worried when I first got it,” Poonam remembers. “I didn’t understand why I was getting injuries on my hand.”

She was finding it difficult to hold onto objects or carry things, the result of a claw hand that was starting to form. It was one year later before she got diagnosed with leprosy.

A month after Poonam started receiving treatment, the Vadala Mission hospital sent a field health worker to check her family members, and her mother was identified as having leprosy.

Poonam’s mother was fortunate; women are disproportionately affected by leprosy because many miss out on early diagnosis and treatment. This delay can result in impairments or crippling disabilities that often accompany the disease.

_mg_5112Today, Poonam is a picture of health, though one finger is slightly bent. Her doctor and physiotherapist encourage her to take better care of her hand. They explain she should be doing massaging and exercises at home so that the hand can fully heal.

Poonam looks sheepish, but doesn’t seem too concerned. “She is well otherwise,” Dr Prabhakar sighs. “She says she is worried a little bit for her future – that her hand might not get back to normal, but I tell her that for that to happen she MUST do her exercises!”

_mg_4905With some hard work, there could soon be no remaining trace of Poonam’s clawed hand. Instead of leprosy leaving her with a lifelong disability, thanks to the excellent medical care she has received, Poonam can now look forward to a full, happy life.

UPDATE: Poonam has been married for the last two years. She is staying in another village with her in-laws and husband. She is regularly taking care of her hands and feet. Poonam is happy because her husband and new family take care of her!

Photos by Tom Bradley

Return to Zero Disabilities home page