Submission on human rights of persons affected by leprosy in Pakistan

26 Jan 2024

ILEP coordinated a submission to the 19th Pre-session of the CRPD Committee recommending inclusion in the List of Issues of a set of measures assuring the human rights of persons with disabilities, including persons affected by leprosy, in Pakistan, especially […]

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Statement in support of Special Rapporteur’s presentation to the Human Rights Council

15 Jun 2023

ILEP’s statement welcomed the report and gave ILEP’s own perspective on the achievements of the mandate during the past six years. It also highlighted the long list of remaining challenges and the related recommendations of the UN Special Rapporteur, and […]

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Speech on NGO role in combatting stigma

3 Jun 2023

The ILEP CEO proposed six ways in which ILEP members and other NGOs can contribute to the goal of zero leprosy-related stigma and discrimination. He also suggested reasons why States are slow to repeal and amend discriminatory laws.

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Submission on UHC

28 May 2023

ILEP supported a constituency statement urging Member States to champion health equity for persons with disabilities, and ensure accessibility of person-centred primary health care close to where people live and reaching the furthest behind first.

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ILEP statement

12 Jan 2023

ILEP outlined how it works towards zero leprosy, specifically referring to the conclusions and recommendations from the first Vatican symposium in 2016

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ILEP plenary statement

12 Nov 2022

At the opening plenary of the Congress, ILEP used the four collaborative projects agreed by Members in June 2022 as a framework to describe ILEP’s emerging priorities and what these priorities say about the role of ILEP in the coming […]

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ILEP partner statement

30 Sep 2022

ILEP outlined its current strategies in connection with the main themes of the WHO NTDs Roadmap and urged the inclusion of leprosy among NTDs that are the subject of current WHO studies regarding the effects of the Covid pandemic

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Statement regarding discriminatory legislation

30 Sep 2022

ILEP urged repeal of the discriminatory marriage law, with reference to Nepal’s obligations under the CRPD Convention and other relevant factors

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Statement in support of Special Rapporteur’s presentation to the Human Rights Council

21 Jun 2022

ILEP supported the Special Rapporteur’s report and recommendations related to the right of people affected by leprosy to the highest attainable standard of physical and mental health.

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Integration with Skin NTDs on the road to zero leprosy

20 Jun 2022

Responding to prepared questions, ILEP expressed its view on the advantages and disadvantages of the new Skin NTDs Framework in relation to leprosy

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ILEP’s commitments on disability inclusion

28 Feb 2022

ILEP joined several hundred organisations in making a set of commitments, about what ILEP will do in the next 3-4 years towards disability inclusion, including the meaningful engagement of organisations representing persons affected by leprosy.

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Report on the human rights status of persons affected by leprosy and disability in Timor Leste

30 Aug 2021

ILEP partnered with The Leprosy Mission Timor Leste and five local organisations or coalitions of persons with disabilities in this submission to the 40th cycle of the Universal Periodic Review, with recommendations to uphold and protect the rights of persons […]

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Statement in response to report by UN Special Rapporteur

30 Jun 2021

ILEP’s statement welcomed the report and recommendations of the UN Special Rapporteur and emphasised the need for a whole-government approach to ending discrimination in healthcare, education and employment.

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Statement on livelihoods and the right to work, for persons affected by leprosy

30 Jun 2021

At a side event, ILEP proposed a set of interlocking approaches through which NGOs can work with governments to promote livelihoods and the financial independence of people affected by leprosy so that they are not even more left behind.

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Report on the human rights status of persons affected by leprosy and disability in Papua New Guinea

17 Apr 2021

ILEP partnered with The Leprosy Mission PNG and two local coalitions of persons with disabilities in this submission to the 39th cycle of the Universal Periodic Review, with recommendations to uphold and protect the rights of persons affected by leprosy and […]

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ILEP submission in relation to CRPD Committee’s draft General Comment on Article 27

17 Mar 2021

This submission drew the Committee’s attention to leprosy-specific issues related to the right to work and commented on the draft General Comment from a leprosy perspective. It urged the Committee to explicitly reference leprosy in its final draft.

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ILEP statement on impact of COVID-19 on persons affected by leprosy, to opening CRPD Committee session

17 Mar 2021

This statement summarised the results of a survey of organisations of persons affected by leprosy about the impact of the pandemic and drew particular attention to intersectionality, where vulnerability caused by leprosy worsens, and is made worse by, other vulnerabilities.

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Written statement regarding impact of COVID-19 on persons affected by leprosy

9 Oct 2020

ILEP summarised key concerns around COVID-19 and urged WHO and Ministries to work with leprosy program managers on safe and effective transition to the ‘new normal’ and innovative approaches to the continuum of care during ongoing pandemic.

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Report on human rights situation of persons affected by leprosy in Sierra Leone

9 Oct 2020

ILEP and one of its member associations supported this submission written by the National Association of Persons Affected by Leprosy in Sierra Leone to the 38th cycle of the Universal Periodic Review, with recommendations to address issues related to stigma […]

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Report on human rights situation of persons affected by leprosy in Mozambique

9 Oct 2020

ILEP partnered in this submission by three of its member associations and two organisations of persons affected by leprosy to the 38th cycle of the Universal Periodic Review, with recommendations to prevent ongoing social exclusion and provide adequate care to […]

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Written statement regarding impact of COVID-19 on persons affected by leprosy

10 Sep 2020

ILEP summarised key concerns around COVID-19 and urged WHO and Ministries to work with leprosy program managers on safe and effective transition to the ‘new normal’ and innovative approaches to the continuum of care during ongoing pandemic.

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Statement in support of Special Rapporteur – Leprosy presentation to Human Rights Council

11 Jul 2020

ILEP supported the framework for inclusion recommended in the presentation of Alice Cruz to the Human Rights Council and urged renewal of her mandate as Special Rapporteur.

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Report on the situation of women affected by leprosy in Indonesia

30 Jun 2020

ILEP supported this submission by 14 organisations in Indonesia to the  78th pre-session of the CEDAW Committee. It proposes a series of government actions to promote the rights of women affected by leprosy in Indonesia within the CEDAW framework.

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Report on the stigma and discrimination faced by persons affected by leprosy in Myanmar

11 Jun 2020

ILEP supported this submission by one of its member associations and a civil society organisation in Myanmar to the 37th cycle of the Universal Periodic Review, containing recommendations to prevent ongoing social exclusion and boost the inclusion of persons affected […]

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Report on the human rights status of persons affected by leprosy in Nepal

11 Jun 2020

ILEP partnered in this submission to the 37th cycle of the Universal Periodic Review of recommendations to prevent ongoing social exclusion and stigmatisation of persons affected by leprosy in Nepal.

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ILEP submission on ending discrimination against children from families affected by leprosy in Vietnam

11 Mar 2020

This submission to the 87th pre-session of the Committee on the Rights of the Child recommended a set of actions by the government to protect the rights of children from families affected by leprosy, in line with the Convention on […]

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Submission on ending discrimination against persons affected by leprosy in Indonesia

1 Feb 2020

ILEP supported this submission by 14 civil society organizations in Indonesia to the 13th Pre-session of the CRPD Committee. It recommends inclusion in the List of Issues of a set of measures promoting the rights of persons with leprosy related […]

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ILEP submission on ending discrimination against persons affected by leprosy in China

1 Feb 2020

This submission to the 13th Pre-session of the CRPD Committee recommended inclusion in the List of Issues of a set of inclusions assuring the human rights of persons affected by leprosy in China, especially regarding the plight of older people […]

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Submission in relation to initial CRPD report of Bangladesh

1 Feb 2020

This submission to the Bangladesh country briefing at the 23rd CRPD session proposed a set of actions to improve the human rights situation of persons affected by leprosy in Bangladesh.

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Submission on ending discrimination against persons affected by leprosy in Angola

1 Feb 2020

ILEP supported this submission by two civil society organizations in Angola to the 13th Pre-session of the CRPD Committee. It recommends inclusion in the List of Issues of a range of actions to reduce stigma, poverty and human rights abuses […]

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ILEP submission on ending discrimination against persons affected by leprosy in Lao PDR

1 Sep 2019

This submission to the 12th Pre-session of the CRPD Committee recommended inclusions on human rights and leprosy in the List of Issues for Lao PDR.

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ILEP submission on ending discrimination against persons affected by leprosy in Singapore

1 Sep 2019

This submission to the 12th Pre-session of the CRPD Committee recommended repeal or amendment of four discriminatory laws in the List of Issues for Singapore.

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ILEP submission on ending discrimination against persons affected by leprosy in Mexico

1 Sep 2019

This submission to the 12th Pre-session of the CRPD Committee recommended inclusions on human rights and leprosy in the List of Issues for Mexico.

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ILEP submission on ending discrimination against persons affected by leprosy in Venezuela

1 Sep 2019

This submission to the 12th Pre-session of the CRPD Committee recommended inclusions on human rights and leprosy in the List of Issues for Venezuela.

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ILEP submission on ending discrimination against persons affected by leprosy in India

1 Sep 2019

This submission to the India country briefing at the 22nd CRPD session recommended, among other actions, immediate steps to repeal or amend the 108 discriminatory acts in force in India and to pass the proposed Elimination of Discrimination against Persons […]

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ILEP statement on key themes on human rights and leprosy to opening CRPD Committee session

1 Aug 2019

This statement was delivered during the NGO briefings to the opening session of the 22nd CRPD Committee. It introduces the main themes included in the country-specific ILEP submissions to the 22nd session and the 12th pre-session.

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ILEP submission on ending discrimination against persons affected by leprosy in Myanmar

1 Aug 2019

This submission to the Myanmar country briefing at the 22nd CRPD session recommended a set of actions to improve the human rights situation of persons affected by leprosy in Myanmar.

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ILEP briefing on leprosy to CRPD Committee side event

1 Apr 2019

This is the first formal briefing on leprosy by ILEP to the CRPD Committee. It was delivered to a lunchtime briefing session on leprosy in April 2019. It introduces leprosy as a human rights issue and urges the Committee to […]

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Submission on ending discrimination against women affected by leprosy in Ethiopia

1 Feb 2019

ILEP supported this submission by one of its Member associations to the 72nd session of the CEDAW Committee covering government actions to improve the human rights situation of women affected by leprosy in Ethiopia.

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