Mohammed’s family feared his leprosy. He was locked up indoors and was refused permission to go outside. He now travels the villages to spread the word that leprosy can be cured and that the people affected by it, should not […]
In 2002, the American Leprosy Missions (ALM) began a partnership with the Infectious Disease Research Institute in Seattle, Washington to develop a vaccine for leprosy. An investment of 17 years and more than $6 million has resulted in LepVax: a […]
The first World NTD Day will be on 30 January 2020 – the same as World Leprosy Day in India (in the rest of the world it will be on 26 January 2020). Announced on 19 November 2019 at the […]
The InfoNTD and Infolep websites are now ready for you to visit. They have all new functionalities and a much friendlier design. If you work in the fields of Neglected Tropical Diseases (NTDs) or leprosy (as a researcher, programme manager, M&E officer, policy maker, or health […]
The Leprosy Research Initiative (LRI), NLR, and the Global Partnership for Zero Leprosy (GPZL) hosted a 4-day workshop in Amsterdam, 5-8 November 2019, to discuss issues related to post-exposure prophylaxis (PEP). PEP involves the use of preventative antibiotics given to […]
The Global Partnership for Zero Leprosy (GPZL) has done its second country review – this one in Morocco – and will be reorganising the Operational Excellence Working Group to work further on the toolkit and related helpdesk; technical support; and advocacy around […]
ILEP and its Members have been very involved in the development of the new Neglected Tropical Disease (NTD) Roadmap. With the NGO NTD Network (NNN) partners we have worked closely with the World Health Organization’s NTD Department to ensure that […]
By Pradeep Bagival World Mental Health Day is on 10 October every year. The day is designed to raise awareness on mental health and directly tackle the stigma that too often faces people and families affected by mental health problems. […]
Ten-year-old Hannah lives in a small village in Liberia, surrounded by lush, green vegetation. It’s a remote place; after driving two hours on brown dirt, Hannah’s family can arrive at the closest main road. One day, when Hannah was running […]
Alice Cruz, the Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family members, will focus her next thematic report on the policy model to eliminate discrimination against person affected by leprosy and their family […]
By Paul Saunderson The overall impression from delegates is that the International Leprosy Congress (ILC) 2019 was successful in bringing together, in an attractive setting, people from many different walks of life, with an interest in leprosy. The Philippine International […]
NLR is delighted to announce that it received funding to start PEP (post-exposure prophylaxis) projects in Mozambique and Nigeria. Currently, there are only three African governments that have some experience with the PEP approach: Morocco, Tanzania, and the Comoros. Other […]
The Association for the Advancement of Assistive Technology in Europe has published a declaration calling for access to assistive technology to be improved as a way of realising the human rights of disabled people. According to AAATE, people are made […]
This month the ILEP President (Jan van Berkel) and CEO (Geoff Warne) had a day in Basel, meeting some of the Novartis team most involved in leprosy. We saw in person how a commitment to leprosy flows from the most […]
Fontilles recently published the full English version of the Fontilles and leprosy in Spain portal of the Miguel de Cervantes Digital Library. This new English portal includes the Fontilles Historical Archive and the Digital Library Miguel de Cervantes. They were […]
NLR sponsored Hoa Pham, a Vietnamese orthopaedic technologist with extensive experience, to participate and contribute to the GReAT Consultation 2019 in Geneva. The Global Report on effective access to Assistive Technology (GReAT) Consultation 2019 was held in Geneva on 22 […]
‘These shoes are made for walking’, an NLR and Liliane Foundation project, helps to train more orthopaedic shoemakers in Southeast Asia. Hoa Pham, a Vietnamese orthopaedic technologist, helped to train students from various Southeast Asian countries to become orthopaedic shoemakers. After […]
The first high-level meeting on Universal Health Coverage (UHC) was held in New York under the theme, “Universal Health Coverage: Moving Together to Build a Healthier World” in late September. The meeting was looking to move progress forward on UHC […]
Earlier this month, effect:hope welcomed Kim Evans as its new CEO. A visionary leader and strategist, Evans received her law degree from Western University in London, Ontario, Canada and practised for 18 years. She then worked for 16 years at […]
We’re delighted to announce that Maryse Legault has been elected to the ILEP Executive Board. Maryse is director of Secour aux Lepreux/Leprosy Relief in Canada, where she first joined in 1981. She has a graduate degree in genetics and an […]
The 2018 Global Leprosy Update was published in the Weekly Epidemiological Review on 30 August. This report is WHO’s snapshot of the global leprosy situation at the end of 2018. This year’s report is longer and more thorough than the […]
At the first Global Forum of People’s Organizations on Hansen’s Disease, which took place from 7-10 September 2019 in Manila, leprosy affected participants had the chance to exchange opinions, ideas and experiences along with strategies on entrepreneurship models to attain […]
Two ILEP Coordination meetings took place in Manila on 9 September. The countries discussed were Bangladesh and Niger. The Bangladesh meeting resulted in the ILEP Members identifying several areas for possible collaboration in the future. It was agreed that an ILEP […]
GPZL has launched the Zero Leprosy Toolkit in September at ILC, and is in the process of updating its Action Framework. The GPZL Leadership Team had a full day meeting on 9 September in Manila before the International Leprosy Congress. […]
On September 10 the ILEP Members’ Assembly held a morning session that was open to all. The session included updates from The Global Partnership for Zero Leprosy, WHO Global Leprosy Programme, Alice Cruz – the UN Special Rapporteur on the […]
More than 1,000 delegates from 55 countries met in Manila to share research and experience on all facets of leprosy. The International Leprosy Congress is a once-in-three-years ‘snapshot’ of the leprosy world. It was impressive to see people who had […]
A successful NTDs NGO Network (NNN) Conference saw the inaugural NTD Innovation Prize, an initiative of American Leprosy Missions. Through the support of six ILEP Members, ILEP was one of the platinum sponsors of this Conference. Given that the International […]
ILEP institutional fundraisers in Nepal have decided to work together and form an informal network. This network will help the international funders to overcome the possible perception of lack of accountability and the difficulty they may face in establishing credible […]
The CRPD Committee has highlighted leprosy in its concluding observations on India, and is showing a strong ongoing interest in human rights for persons affected by leprosy. This month ILEP has made four written and oral submissions to the CRPD […]
Humanity & Inclusion and the Global Rehabilitation Alliance recently published the Report “Rehabilitation for the realisation of human rights and inclusive development,” which places rehabilitation and disability within the context of the Sustainable Development Goals (SDGs) and Universal Health Coverage (UHC). […]
The 3rd CBR/CBID World Congress will be taking place on 28-30 July 2020 in Entebbe, Uganda with the theme to Leave No One Behind – local to global multisectoral collaboration for persons with disabilities to realise their human rights in […]
Neglected tropical diseases (NTDs) persist in places like Nepal where many people living in poverty do not have adequate water, sanitation and hygiene (WASH). This contributes to the spread of NTDs like leprosy, which can cause disabilities and drive people […]
Josiane lives with her mother Josephine in a little grass hut with a beautiful view of the hills near Bukavu, Eastern Congo. She welcomes us with a smile and our visit creates quite a stir among the neighbours. They don’t […]
On 26 August 2019 Geoff Warne, ILEP CEO, addressed the Committee at its opening session. He thanked them for so positively including the disabling effects of leprosy within the scope of their work. Even when there are no visible impairments, […]
At the invitation of the Ministry of Health, the Global Partnership for Zero Leprosy (GPZL) and the World Health Organization (WHO) conducted a joint review of the leprosy programme in Nepal in July. This was done in close collaboration with […]
The GPZL’s Research Agenda Working Group analysed leprosy research and developed priorities in the key areas that are expected to accelerate progress towards zero leprosy. This completed body of work now forms globally agreed research agenda for leprosy. The reports […]
A proposal for the 100&Change, a MacArthur Foundation competition for US $100 million, was submitted on August 6. MacArthur’s goal is to use its investments to take on problems that cannot be solved any other way than through a huge […]
ILEP, in association with the NNN (NGO NTDs Network), has been advocating to make sure that the new NTDs Roadmap fully incorporates the ongoing consequences of NTDs like leprosy. While we recognise the enthusiasm to see a 90% reduction in […]
In order to track progress towards the goal of Zero Discrimination and Stigma, ILEP has reviewed and updated the list of discriminatory laws found worldwide. The current list shows a total of 139 laws that discriminate against people affected by leprosy in […]
From September 11 to 13, ILEP will be at its booth at the International Leprosy Congress (ILC). We hope that you’ll come and visit us! ILEP would love to showcase the breadth of work that is going on in the […]