Ahead of World Leprosy Day 2019, we meet inspiring people fighting against the stigma and discrimination associated with leprosy. From Brazil, this is Valdenora’s remarkable story of survival, recovery and advocacy. Valdenora da Cruz Rodrigues was born on May 24, […]
Open letter to President Macron of France, organised by an informal, global network of people affected by leprosy. Dear Mr. President, As women and men who have experienced Hansen’s disease, more commonly known as leprosy, we were disheartened to read […]
Le docteur Sushil Koirala lutte en faveur des droits humains et de la paix depuis plus de 15 ans. Surnommé « The Rose Doctor », il a fondé la campagne « The Rose Movement », dont l’objectif est d’apporter la paix et le bonheur aux […]
Dr. Sushil Koirala ’The Rose Doctor’ has been a human rights and peace activist for over 15 years, and is the founder of the Rose Movement, a campaign to help bring peace and joy to others. We reached out to […]
Irene Allen joined Lepra in 1981 as the Director’s Secretary, and then became Research and Projects Officer, Information Officer, and finally Assistant Editor to Leprosy Review. She is also Lepra’s archivist and historian. Irene will be retiring at the end […]
Rachna Kumari spoke to ILEP’s Rosa Argent at the NNN 2018 conference in Addis Ababa at the end of September. Rachna is a Community Mobiliser in a LEPRA Society’s leprosy referral centre in Munger, Bihar State of India, and is […]
WHO data: 210,671 new leprosy cases reported in 2017 At the end of August, the World Health Organisation published its annual statistics on world leprosy. These provide data about the current state of leprosy from 150 countries – more than ever before. […]
This month ILEP’s Rosa Argent catches up with Christine Fenenga, the Operational Excellence Working Group Coordinator of the Global Partnership for Zero Leprosy. Born on a small island in the north of The Netherlands called Schiermonnikoog, Christine left the island […]
This month we catch up with Anna Wickenden, the Director of the AIM Initiative, and hear her views on how the leprosy community can demonstrate leadership in the broader fight against NTDs. Born in London, U.K., Anna Wickenden’s commitment to […]
On behalf of the ILEP Board, Jan van Berkel, ILEP President, has announced the appointment of Geoff Warne as Chief Executive Officer for the federation. “I am delighted to announce that Geoff Warne, who is well known to many of […]
The Leprosy Mission sent a delegation to the 11th conference of the state parties to the UN Convention on the Rights of Persons with Disabilities, held on 12-14 June in New York at UN HQ. Here Pradeep Bagival, Head of Advocacy […]
ILEP oral submission to the 38th Session of the Human Rights Council Statement from Mathias Duck, Chair of the ILEP Panel of Men and Women Affected by Leprosy ILEP, the International Federation of Anti Leprosy Associations – a network of NGOs […]
This month, we talk to the CEO of the Damien Foundation and ILEP country coordination champion, Alex Jaucot, to find out why he is passionate about working together and his thoughts on the future of ILEP. Alex Jaucot knows firsthand […]
We are proud to share with you the major accomplishments of ILEP in our 2017 Annual Report, as we worked collaboratively towards zero transmission, zero disabilities and zero discrimination. Read the full report here!
“ILEP will play a crucial role in the success of the global partnership” This month, ILEP’s Rosa Argent caught up with Courtenay Dusenbury, the Secretariat Director of the Global Partnership for Zero Leprosy, in Colchester to find out what attracted […]
Thursday 22nd March, Colchester – A global assembly, hosted by UK-based specialist leprosy charity, Lepra, brought together delegates from across the world to reinvigorate efforts to beat leprosy[1]. The assembly was held at Lepra’s Head Office in Colchester, Essex on Monday 19th – […]
Ahead of International Women’s Day, 8th March, UK-based leprosy charity, Lepra has published new research which found 30% more women living with leprosy in Bihar, India, than the Indian government. Evidence suggests that gender inequality in leprosy endemic countries is one […]
This month, we catch up with the newly appointed OHCHR Special Rapporteur for the elimination of discrimination against persons affected by leprosy and their families, Alice Cruz, to find out what motivates her to fight for the rights of affected […]
Innovation in science offers new opportunities and hope for achieving zero leprosy. The Partnership will coordinate research in new diagnostics, strategies to interrupt transmission, translation of new evidence into action, and will help strengthen national programs. World Leprosy Day (Jan […]
Blog by Dr. Paul Saunderson, ILEP ITC Chair and Medical Director of American Leprosy Missions, and Rosa Argent, ILEP Comms Manager Leprosy is commonly known as the oldest human disease, given its biblical references and recognition in the ancient civilizations of […]
When Sakshi was just ten, she noticed her little finger on her right hand had become swollen and painful. After a few weeks her whole hand became numb, and she found she was having trouble gripping her pencil. Her classmates […]